Conferences 1998 Boston

FOURTH INTERNATIONAL IACFS CONFERENCEBoston, October 10-12, 1998
Hyatt Regency Hotel, Cambridge, Massachusetts, USA
Schedule as of 6 July 1998For information about poster presentations at this meeting.


 RESEARCH CONFERENCESaturday, October 10, 1998 to 11:00AM Sunday, October 11, 1998Day/date/time Topic/SpeakersSaturday, 10/10/98 IACFS Scientific Program Opens8:AM Welcome Anthony L. Komaroff MD, Conference Chair8:00AM-9:30AM    Scientific Session - Epidemiology
New Insights into the Epidemiology of CFS
Co-Chairs: Leonard Jason PhD & William Reeves MD
Each Presentation will be followed by Q & A
Arthur Hartz MD PhD - Prognostic factors for persons with chronic fatigueLeonard Jason PhD - CFS Community-based study of prolonged fatigue and chronic fatigueKaren Jordan PhD - Prevalence and characteristics of pediatric CFSPeter Manu MD - The overdiagnosis of CFS: a cross-sectional study of a disabled populationMichele Reyes PhD - Update: Wichita population-based study of fatiguing illnessLana Tiersky PhD - The fluctuation and outcome of CFS over time9:30AM-11:00AM Scientific Session - Clinical Studies
State of the Art in Clinical Studies
Co-Chairs: Dedra Buchwald MD & David Klonoff MD
Each Presentation will be followed by Q & A
Joseph Bellanti MD - The measurement of 5-HIAA urinary concentrations as a predictive marker of  efficacy of NADA in CFSNancy Klimas MD - A phase 1 trial of autologous ex vivo expanded lymph node derived cells as immunomodulatory therapy in CFSDavid Klonoff MD - Rehabilitation from work disability due to CFSAndrew Lloyd MD - a prospective cohort study of post-infective fatigue: illness characteristics and relationship to immunological and psychological disturbanceGreta Moorkens MD - Effect of growth hormone treatment in patients with CFS: a preliminary studyDavid Strayer MD - Durability of therapeutic benefit with Ampligen treatment of CFS as measured by the Karnofsky Performance Score (KPS), Physical and quality of life improvements manifest with Ampligen treatment of CFS11:00AM-11:30AM Open Q & A for Patients with Chairs of Epidemiology and Clinical Studies Sessions12:00PM-1:15PM Scientific Session - Immunology
Immunology - the Current State of the Science
Co-Chairs: Sudhir Gupta MD, PhD & Andrew Lloyd MD
Each Presentation will be followed by Q & A
Harvey Moldofsky MD - Disordered circadian sleep-wake neuroendocrine and immune functions in CFSEng Tan MD - Development of an assay to quantitate autoantibodies to lamin B1 in CFSAri Vojdani PhD - The role of interferon induced protein kinase RNA (PKR) in abnormal apoptotic cell population in patients with CFSStacy Wagner MS - Immunologic status correlates with severity of physical symptoms in CFS patientsQuanwu Zhang PhD - Altered immune status in gulf veterans with CFS1:15PM-2:30PM Scientific Session - Interdisciplinary/Psychiatry
Review of Current Interdisciplinary Studies
Co-Chairs: Mark Demitrack MD & Michael Sharpe MD
Each Presentation will be followed by Q & A
Noble Endicott MD - CFS: Evidence of premorbid anomalous patterns of brain organizationBrigitta Evengard MD - On symptoms and life events surrounding the onset of CFSDenise Fairhurst PhD Candidate - Slowed processing in CFSRichard Marlin PhD - A final common pathway for CFS, FM, and chronic pain: physiologic, psychiatric or behavioralNorma Ware PhD - Culture, work and disability in CFS2:45PM-6:00PM Scientific Peer Reviewed Poster Session
Moderated Discussion of Scientific Studies
Paul Levine MD, Chair
Presentations will be followed by Q & A
 6:00PM-6:30PM Open Q&A for Patients with Chairs of Immunology & Interdisciplinary Studies Sessions6:30PM-7:00PM Biannual IACFS Membership Meeting7:30PM-9:00PM Research Methodology: Five Concurrent Sessions
Leonard Jason PhD, Chair
Pediatric Issues
Bryan Carter PhD & Mark S. Smith MD
Diagnostic Criteria for the Case Definition
Albert Donnay MHS, Leonard Jason PhD & Charles Lapp MD
Psychosocial Assessment Issues
Fred Friedberg PhD & Gloria Furst OTR/L, MPH
Physiology and Immunology
Benjamin H. Natelson MD & William Gause MD
Rehabilitation Issues
Patricia Fennell CSW-R & Donald Uslan MSW, MBA
 SUNDAY, OCTOBER 11, 19988:00AM-11:00AM IACFS Scientific Program (Continued)8:00AM-8:45AM Scientific Session - Microbiology
Current Microbiology Research Findings
Co-Chairs: Dharam Ablashi DVM & Jay Levy MD
Each Presentation will be followed by Q & A
Dharam Ablashi DVM - Increased activation of HHV-6, but not HHV-7 or HHV-8, in CFS patientsKonstance Knox PhD - Persistent active HHV-6 infections in patients with CFSRobert Suhadolnik PhD - Biochemical dysregulation of the 2-5A/RNase L antiviral defense pathway in CFS8:45AM-11:00AM Scientific Session - Physiology
Current Physiology Research Findings
Co-Chairs: Peter Behan MD, ChB & Benjamin Natelson MD
Each Presentation will be followed by Q & A
Ellen Bazelmans PhD - Levels of activity and fatigue after extreme exercise in CFSPeter Behan MD, ChB - The symptoms of CFS are related to abnormal ion channel functionGijs Bleijenberg PhD - Identifying physical activity patterns in CFS using actigraphic assessmentKenny De Meirleir MD, PhD - RNase L dysfunction disorder (R.E.D.D.) in CFSSusan Horvath PhD Candidate - Characterization of RNase L dysfunction in peripheral blood  mononuclear cell extracts from patients with CFSLorna Paul MS - The effect of exercise on gait in patients with CFSArnold Peckerman PhD - CFS severity is related to reduced stroke volume and diminished blood pressure responses to mental stressSue Ann Sisto PhD - Cardiovascular responses during a cognitive stressor before and after exercise in  CFS vs. sedentary healthy subjectsJulian Stewart MD, PhD - Patterns of orthostatic intolerance and abnormalities in heart rate variability suggest autonomic dysfunction in CFS during adolescence11:00AM-11:30AM Open Q & A for Patients with Chairs of Microbiology and PhysiologySessions CLINICAL CONFERENCE11:30AM-9:00PM IACFS Clinical Conference11:30AM-12:00PM Living with CFS: Voices of the Patients
Panel of Patients ( Speakers TBA)
 12:00PM-1:00PM The Biological Aspects of CFS:
Summary of the State of Our Knowledge
Ted Dinan MD, Chair
John DeLuca PhD
Nancy Klimas MD
Presentations will be followed by Q & A
 1:00PM-2:00PM CFS in Children and Adolescents
Co-Chairs: David Bell MD & Charles Lapp MD
Alan Gurwitt MD
James Jones MD
Karen Jordan PhD
Presentations will be followed by Q & A
2:00PM-2:30PM Diagnostic Test Strategies in Dealing with Fatigued Patients
Kenneth De Meirleir MD, PhD, Chair
James Jones MD
David Klonoff MD
Presentations will be followed by Q & A
 2:30PM-4:30PM Treatment Strategies:
Summary of the State of Our Knowledge
Dedra Buchwald MD, Chair
David Bell MD
Paul Cheney MD
Nelson Gantz MD
Charles Lapp MD
Daniel Peterson MD
Michael Sharpe MD
Presentations will be followed by Q & A
 4:30PM-5:30PM Perspectives on Disability and Rehabilitation:
Summary of the State of Our Knowledge
Donald Uslan MA, MBA, Chair
Mark Bronstein Esq.
Fred Friedberg PhD
Marya Grambs MS
Sue Ann Sisto PhD
Presentations will be followed by Q & A
 5:30PM-6:30PM Psychiatric Morbidity and CFS:
Summary of the State of Our Knowledge
Leonard Jason PhD, Chair
Alan Gurwitt MD
Ian Hickie MD
Michael Sharpe MD
Presentations will be followed by Q & A
 6:30PM-7:00PM Open Q & A for Patients with Members of the Psychiatric Morbidity Panel7:00PM-9:00PM Governor Rudy Perpich Memorial Lecture and Banquet
Keynote Speaker: Robert Bennett MD, FRCP, FACP, FACR
Professor of Medicine, Oregon Health Sciences University
Topic: The Interrelationship of CFS and Fibromyalgia
 Presentation of the Rudy Perpich LeadershipAward and the IACFS Junior Investigator Award will take place at the banquet
 PATIENT CONFERENCE9:00AM-6:00PM MONDAY, OCTOBER 12, 19989:00AM-9:30AM Review of the Research Conference
Anthony Komaroff MD, Conference Chair
9:30AM-10:00 AM Living with CFS: Voices of the Patients
Panel of Patients (Speakers TBA)
10:00AM-11:15AM The Biological Aspects of CFS:
Summary of the State of Our Knowledge
Nancy Klimas MD, Chair
John DeLuca PhD
Ted Dinan MD
Presentations will be followed by Q & A
 11:15AM-11:45AM Diagnostic Test Strategies in Dealing with Fatigued Patients
James Jones MD, Chair
David Klonoff MD
Kenneth De Meirleir MD, Ph.D.
Presentations will be followed by Q & A
 11:45AM-12:45PM CFS in Children and Adolescents
Summary of the State of Our Knowledge
Co-Chairs: David Bell MD & Charles Lapp MD
Alan Gurwitt MD
James Jones MD
Karen Jordan MD
Presentations will be followed by Q & A
12:45PM-2:00PM "Ask the Experts" Lunch2:00PM-4:00PM Treatment Strategies:
Summary of the State of Our Knowledge
Paul Cheney MD, Chair
David Bell MD
Dedra Buchwald MD
Nelson Gantz MD
Charles Lapp MD
Daniel Peterson MD
Michael Sharpe MD
Presentations will be followed by Q & A
 4:00PM-5:00PM CFS and Fibromyalgia: the Common Ground
Donald Goldenberg MD
Presentation will be followed by Q & A
5:00PM-6:00PM Perspectives on Disability and Rehabilitation:
Summary of the State of Our Knowledge
Marya Grambs MS, Chair
Mark Bronstein Esq.
Fred Friedberg PhD
Sue Ann Sisto PhD
Donald Uslan MA, MBA
Presentations will be followed by Q & A
 6:00PM-7:30PM Two Concurrent SessionsForum to Discuss the Change of the Name ‘Chronic Fatigue Syndrome’
Anthony Komaroff MD, Chair
 Workshop on Coping Strategies for CFS
Co-Chairs: Patricia Fennell CSW-R & Fred Friedberg PhD
 
  Tuesday, October 13, 1998Adjunct Meeting 
Location    Hyatt Regency Hotel, Dawes Room
                575 Memorial Drive
                Cambridge, MassachusettsFederal Agencies Represented: Centers for Disease Control, Food and Drug Administration, Health Resources & Services Administration, National Institutes of Health, Social Security Administration Preliminary Agenda1) Issues of priorities2) Agency updates regarding CFS research3) Physician/patient education and information4) Review of an approach to the current disease name5) CFS in adolescents6) Public testimony7) Provide recommendations through written documents to Dr. David Satcher 
 PLANNED PARTICIPANTS Dharam V. Ablashi, DVM
Senior Scientist (Virology)
Advanced Biotechnologies, Inc.
Columbia, MDPeter O. Behan, MD, ChB
Professor of Neurology
Institute for Neurological Sciences
University of Glasgow, ScotlandDavid S. Bell, MD
Clinician, Pediatric Specialist
Lyndonville, NYRobert M. Bennett MD, FRCP
Professor of Medicine, Oregon Health Sciences University
Head, Division of Arthritis and Rheumatic Diseases
Portland, ORMark Bronstein Esq.
Private Disability Attorney
Boston, MADedra Buchwald, MD
Associate Professor of Medicine
University of Washington
Seattle, WABryan Carter PhD
Associate Professor, U. Louisville School of Medicine
Chief Psychologist, Child and Adolescent Psychiatry
Louisville, KYPaul Cheney MD
Director, Cheney Clinic
Charlotte, NCJohn DeLuca, PhD
Associate Professor, Neurosciences
University of Medicine & Dentistry
New Jersey Medical School
East Orange, NJKenny De Mierlier, MD, PhD
Professor of Medicine & Physiology
Faculty of Medicine and Pharmacy
Free University of Brussels, BelgiumMark A. Demitrack, MD
Clinical Research Physician
Lilly Research Laboratories, Indianapolis, IN
Adjunct Associate Professor of Psychiatry
University of MichiganTed Dinan, MD
Neuroendocrinologist
Professor, Royal College of Psychiatrists
Dublin, IrelandAlbert Donnay MHS
Executive Director, MCS Referral and Resources
Baltimore, MDPatricia Fennell CSW-R
Albany Health Management Associates
Latham, NYFred Friedberg, PhD
Clinical Assistant Professor of Psychiatry, School of Medicine
State University of New York at Stony Brook
Stony Brook, NYGloria Furst OTR/L, MPH
Occupational Therapy Consultant
Dept. of Rehabilitation Medicine, NIH
Bethesda, MDNelson Gantz MD
Clinical Professor of Medicine, Allegheny University
Chairman, Dept. of Medicine, Polyclinic Hospital
Harrisburg, PAWilliam Gause MD
Professor of Medicine
NJ Medical School
East Orange, NJDon Goldenberg MD
Chief of Rheumatology
Newton Wellesley Hospital
Newton, MAMarya Grambs MS
Consultant, Chronic Fatigue Clinic
University of California, San Francisco
San Francisco, CASudhir Gupta, MD, PhD
Professor and Vice Chairman, Medicine
Chief, Basic and Clinical Immunology
University of California, IrvineAlan Gurwitt MD
Clinician, Child Psychiatry
Newton, MAIan Hickie, MD
U. of New South Wales
The Prince Henry Hospital
Sydney, AustraliaLeonard Jason, PhD
Professor of Psychology
DePaul University
Chicago, ILJames F. Jones, MD
Professor of Pediatrics
University of Colorado
Denver, COKaren Jordan PhD
CFS Epidemiology Project
DePaul University
Chicago, ILNancy G. Klimas, MD
Director, Department of Immunology
University of Miami School of Medicine
Miami, FloridaDavid Klonoff, MD
Clinical Professor of Medicine
University of California, San Francisco
San Francisco, CaliforniaAnthony L. Komaroff, MD
Professor of Medicine
Harvard Medical School
Boston, MAPaul H. Levine, MD
Clinical Professor of Medicine
George Washington University Medical Center
Washington, DCCharles W. Lapp MD
Associate Clinical Professor, Duke University Medical Center
Director, Hunter-Hopkins Center
Charlotte, NCJay A. Levy, MD
Professor of Medicine
Cancer Research Institute
University of California, San FranciscoAndrew Lloyd, MBBS, MD
Associate Professor
Schools of Medicine and Pathology
University of New South Wales
Sydney, AustraliaBenjamin Natelson, MD
Professor of Neurosciences; Director, NJ CFS Cooperative Research Center
New Jersey Medical School
East Orange, NJDaniel Peterson, MD
Clinician
Sierra Internal Medicine
Incline Village, NVWilliam C. Reeves, MD
Chief, Viral Exanthems and Herpes Branch
Center for Infectious Diseases, US Centers for Disease Control and Prevention
Atlanta, GAMichael Sharpe, MD
Senior Lecturer in Psychological Medicine
U. of Edinburgh
Edinburgh, ScotlandMark S. Smith MD
Associate Professor of Pediatrics
U. Washington School of Medicine
Seattle, WADonald Uslan, MA, MBA
Psychotherapy and Rehabilitation Counselor
Northwest Counseling Associates
Seattle, WA