Conferences 2007 Fort Lauderdale Eighth International Conference Agenda - Patient


The Patient Conference Agenda

Wednesday, January 10th
8:30 -9:00 am – Commodore Ballroom
Welcome & Opening Remarks
Nancy Klimas, MD

President, IACFS
Faculty, Dept. of Medicine, University of Miami School of Medicine

Marly C.  Silverman
Founder, Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy (P.A.N.D.O.R.A.)


9:00-10:00am – Commodore Ballroom

Legislatively Speaking

Tom Sheridan

 


10:00am

Exhibit Hall Opens

10:00 – 10:15 am

Break  - See Exhibitors


 

10:15-11:00 am - Commodore Ballroom

Advocacy Workshop
Fundraising Fundamentals

Joanne Nowlin Davis, CFRE

10:15-11 a.m – Seafarer

Advocacy Workshop
Empowerment within the CFS Community

Kim McCleary

10:15-11:45 – Mariner Room

Workshop: Understanding and Living with CFS/FM
Lyme Disease

Garth Nicholson, PhD

10:15-11:00 – Clipper Room

Understanding and Living with CFS/FM
Ergonomics, Posture and Natural Pain Relief

Bernard Burton, DOC


11:00-12:00 pm - Commodore Ballroom

Advocacy Workshop
Media Panel: How to Convey your Advocacy Message to the Media
Slide Presentation by Sheila Hershow, Dezenhall Resources

 

Moderator: Marly C. Silverman

Panel:Martin Kramer, Ron St. John, Marla Schwartz& Diane Mohoreanu

11:00-12:00 pm – Mariner Room

Workshop: Understanding and Living with CFS/FM
Social Security Disability Issues

Lyle Lieberman, JD & Robert Gutierrez, JD

 

11:00-12:00 pm – Seafarer Room
Workshop: Understanding and Living with CFS/FM
Effective Treatment of CFS & Fibromyalgia-including new research on D-Ribose

Jacob Teitelbaum, MD

11:00-12:00 - Clipper

Workshop: Understanding and Living with CFS/FM
SPANISH SPEAKING ONLY
Fibromyalgia and Chronic Fatigue Syndrome en Espanola

Maria Gutierez, MD & Jackie Junco-Valderes, MD


12:00-1:15 pm – Lunch


1:15-2:15 pm – Commodore Ball Room

Understanding and Living with CFS/FM
SPANISH SPEAKING ONLY
Social Security Disability en Espanola

 

Robert Gutierrez, JD

1:15-2:15 pm – Mariner Room

Understanding and Living with CFS/FM
Private Disability Issues and ERISA

 

Steve Krafchick, JD

1:15-2:15 pm – Seafarer Room

Advocacy Workshop

 

Media Training 101 - (You need to sign up ahead of the conference for this presentation if you are not part of the 2007 Advocates Extraordinaire! Leadership and Advocacy Training Program

Diane Mohoreanu

1:15-2:15 pm – Clipper Room 

Advocacy Workshop

Media Training 201  - (You need to sign up ahead of the conference for this presentation if you are not part of the 2007 Advocates Extraordinaire! Leadership and Advocacy Training Program space limited)

 

Sheila Hershow


2:15 - 3:15 pm – Commodore Ballroom

Understanding and Living with CFS/FM
Legal and Medical Issues Affecting Employment for the Disabled and Chronically Ill

 

Moderator: Jason Newfield, JD

Panel: Steve Krafchick, Alicia Paulino-Grishman, Lyle Lieberman, JD, Robert Gutierrez, JD, Rosa Berrocal & Ken Friedman, MD

2:15-3:15 pm – Mariner Room

Understanding and Living with CFS/FM
Technology and the CFS Patient

 

Rebecca Palmberg

2:15 - 3:15 pm - Seafarer Room

Advocacy Workshop

 

Media Training #101 - (You need to sign up ahead of the conference for this presentation if you are not part of the 2007 Advocates Extraordinaire! © Leadership and Advocacy Training Program. Space is limited)

Diane Mohoreanu

2:15 - 3:15 pm - Clipper Room

Advocacy Workshop

 

Media Training #201 - (You need to sign up ahead of the conference for this presentation if you are not part of the 2007 Advocates Extraordinaire! © Leadership and Advocacy Training Program. Space is limited)

Martin Kramer


3:15-3:30 pm       

Break - Visit Exhibits


3:30-4:45 pm - Commodore Ballroom

Moving our Agenda Forward:
Brainstorming Session for All Advocacy Groups

Co-Moderator: Jason Newfield, JD

Co-Moderator: Janet Canterbury, PhD

Group Leaders:  Alexander Kushch, PhD , Beth Wheeling, PhD, Alicia Paulino-Grishman, JD, Justin Frankel, JD, Connie Borschel, Steve Krafchick, JD & Barry Gregory, PhD


4:45-6:00pm – Commodore Ballroom            

Strategy Meeting: Finalize Consensus and Develop Preliminary Patient Issues For Future Presentation to the IACFS Executive Board 

 

Co-Moderator: Jason Newfield, JD

Co-Moderator: Janet Canterbury, PhD

Group Leaders:  Alexander Kushch, PhD , Beth Wheeling, PhD, Alicia Paulino-Grishman, JD, Justin Frankel, JD, Connie Borschel, Steve Krafchick, JD, &Barry Gregory, PhD


6:00-7:00pm – Gardens if weather permits and Seafarer Room

Attendee Networking Reception and
PANDORA Box Art Auction

Start 6:30

7:00-7:45pm - Seafarer Room

Cocktail Speaker
Effective Pain Management in CFS and Fibromyalgia

Jacob Teitelbaum, MD

 

Thursday, January 11th

9:00-10:15am – Commodore Ballroom

What’s New in CFS & FM Science, Treatment and Demographics

Introduction: Nancy Klimas, MD

         President, IACFS
         Faculty, Dept. of Medicine University of Miami, Miller School of Medicine, Miami, FL

Moderator: Eleanor Hanna

       Associate Director, Special Projects and Centers, Office of The Director,
       National Institute of Health

Panel:     Members of the IACFS Board of Directors:

Dharam V. Ablashi, DVM, MS, Dip. Bact., Kenny De Meirleir, MD, PhD, Birgitta Evengård, MD, PhD, Leonard A. Jason, PhD, Hirohiko Kuratsune, MD, D. Med. Sci. & Gudrun Lange, PhD

 


10:15-11:00am

Break - Visit Exhibits


 

11:00-12:00pm – Commodore Ballroom

Workshop: Medical Research and Treatment Updates I
Integrative & Complimentary Medicine

 

Kenny De Meirleir, MD, PhD

11:00-12:00pm – Clipper Room

Workshop: Medical and Research Updates II
Pain

Dr. Steven Croft

11:00-12:00pm – Mariner Room

Workshop: Managing Your Quality of Life Track
The Art and Science Behind coping and Empowerment

Patricia A. Fennell, MSW, LCSW-R, Gudrun Lange, PhD, Fred Friedberg, PhD

 

& Marla Silverman

11:00-12:00pm – Seafarer Room

Workshop: Family Issues and Pediatrics
Finding Medical, School and Community Resources to Treat a Child with CFS

 

Leonard A. Jason, PhD, David Bell, MD & Charles Lapp, MD


12:00-1:30pm

Lunch Break-Visit Exhibits


 

1:30-2:30pm - Commodore Ballroom

Workshop:

Managing Your Quality of Life
Making the Most of Your Doctor ’s Appointments

Lucinda Bateman, MD

 

1:30-2:30pm – Clipper Room

Workshop: Medical Research and Treatment Updates I
Multiple Chemical Sensitivities

 

Alex Delgado, PhD

1:30-2:30pm – Mariner Room

Workshop:
Family Issues and Pediatrics-New Pediatric Case Definition for CFS

Leonard A. Jason, PhD & David Bell, MD

1:30-2:30pm - Seafarer Room

Workshop:
Medical Research and Treatment Updates II
Exercise Challenges for the CFS Patient

Kenny De Meirleir, MD & Chuck Lapp, MD


2:30-3:30pm – Commodore Ballroom

Workshop: Family Issues and Pediatrics- Couples, Sex & Family

Patricia A. Fennell, MSW, LCSW-R 

 

2:30-3:30pm- Clipper Room

Workshop: Medical and Research Updates III
HHV 6 Update

Jose Montoya

2:30-3:30pm – Mariner Room

Workshop: Medical and Research Updates I
Sleep Disorders are they the Cause or the side effect of CFS

David Bell, MD

2:30-3:30pm- Seafarer Room

Workshop: Medical Research and Treatment Updates II
Risk Factors for people with CFS

 

Leonard A. Jason, PhD


3:30-4:00pm

Break - Visit Exhibits


 

4:00-5:30pm – Commodore Ballroom

Ask the Experts

Moderator:  Nancy Klimas, MD
     President, IACFS
     Faculty, Dept. of Medicine,
    University of Miami School of Medicine

Panel: IACFS Board of Directors:

David S. Bell, MD, Lucinda Bateman, MD, Kenny De Meirleir, MD, PhD, Patricia Fennell, MSW, CSW-R, Fred Friedberg, PhD & Charles W. Lapp, MD


6:00-8:30pm – Seabreeze

Attendee Banquet and P.A.N.D.O.R.A.  Sand Castle Awards

Keynote Address: Paul R. Cheney, MD, PhD

The State of the Art of CFS