Patient Agenda

September 22, 2011

AGENDA

9:30 am – 9:40 am
Welcome & Introduction
Fred Friedberg, Ph.D.

President, IACFS/ME,
Research Associate Professor
, Stony Brook University, Stony Brook, NY

9:40 am – 10:00 am
How I Help CFS/ME Patients in Canada
Byron Hyde, M.D.

Founder and Chairperson, Nightingale Research Foundation, Private Practice, Ottawa

10:00 am - 10:20 am
New Developments in Possible Causes of ME/CFS
Anthony L. Komaroff, M.D.

Simcox-Clifford-Higby Professor of Medicine, Harvard Medical School, Boston, MA
Senior Physician, Brigham & Women’s Hospital, Boston, MA
Editor-in-Chief and Publisher , Harvard Health Publications Division, Harvard Medical School

10:20 am – 11:00 am
What Helps People Cope with ME/CFS
Fred Friedberg, Ph.D.

President, IACFS/ME
Research Associate Professor
, Stony Brook University, Stony Brook, NY
Leonard A. Jason, Ph.D.
Professor , DePaul University, Chicago, IL

11:00 am - 11:20 pm
Break


11:20 am - 12:00 pm
Fibromyalgia: Current Status
Roland Staud, M.D.

Professor , University of Florida, Gainsville, FL

12:00 pm – 1:30 pm
Lunch Break/ Visit Exhibits


12:15 pm – 1:15 pm
Breakout Session: For parents of children with ME/CFS
Rosamund Vallings, MNZM, MB BS

Secretary, IACFS/ME
Family Physician
, Howick Health and Medical Clinic, Auckland, New Zealand
Teruhisa Miike, M.D, Ph.D.
Board Member, IACFSME
Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

1:30 pm - 2:00 pm
Legal Aspects of Disability
Hugh R. Scher

Barrister & Solicitor, Toronto, Canada

2:00 pm - 2:20 pm
Latest Research on the Pathophysiology of ME/CFS
Nancy Klimas, M.D.

Immediate Past President, IACFS/ME
Professor of Medicine, Microbiology, Immunology and Psychology , University of Miami, Miller School of Medicine and Miami VA Medical Center

2:20 pm - 2:40 pm
Disease and Discovery: What Have We Learned?
Annette Whittemore

Founder & President , Whittemore Peterson Institute for Neuro-Immune Disease, Reno, NV

2:40 pm – 3:00 pm
Effective Management of Activity Intolerance
Staci R. Stevens, M.A .

Vice President, IACFS/ME
Founding Executive Director , Fatigue Lab, University of the Pacific, Stockton, CA

3:00 pm - 3:30pm
Break


3:30 pm – 3:50 pm
Tools to Stop Crashing, Start Pacing and Planning Your Health
Alison Bested, M.D.

Haematological Pathologist, Medical Specialist Liaison, Environmental health Clinic, Women’s College Hopsital, Lecturer, Community and Family Medicine Faculty of Medicine, University of Toronto

3:50 pm - 4:10 pm
Differentiating ME/CFS and Fibromyalgia from Psychiatric Disorders
Eleanor Stein, M.D.

Psychiatrist in Private Practice
Clinical Assistant Professor, Dept of Psychiatry, University of Calgary

4:10 pm – 4:30 pm
Advocacy (ME/FM Action Network)
Lydia Neilson

Founder & CEO , National ME/FM Action Network

4:30 pm - 5:30 pm
Panel Question & Answer Session

Panel includes: Fred Friedberg, Ph.D., Byron Hyde, M.D., Anthony Komaroff, M.D., Leonard Jason, Ph.D., Hugh Scher, Rosamund Vallings, MB, BS, Teruhisa Miike, M.D, Ph.D., Roland Staud, M.D., Lydia Neilson, Nancy Klimas, M.D, Annette Whittemore, Eleanor Stein, M.D., Alison Bested, M.D.

5:30 pm –7:00 pm
Reception & Movie Debut “Voices from the Shadows”

 


Patient Agenda

September 22, 2011

AGENDA

9:30 am – 9:40 am
Welcome & Introduction
Fred Friedberg, Ph.D.

President, IACFS/ME,
Research Associate Professor
, Stony Brook University, Stony Brook, NY

9:40 am – 10:00 am
How I Help CFS/ME Patients in Canada
Byron Hyde, M.D.

Founder and Chairperson, Nightingale Research Foundation, Private Practice, Ottawa

10:00 am - 10:20 am
New Developments in Possible Causes of ME/CFS
Anthony L. Komaroff, M.D.

Simcox-Clifford-Higby Professor of Medicine, Harvard Medical School, Boston, MA
Senior Physician, Brigham & Women’s Hospital, Boston, MA
Editor-in-Chief and Publisher , Harvard Health Publications Division, Harvard Medical School

10:20 am – 11:00 am
What Helps People Cope with ME/CFS
Fred Friedberg, Ph.D.

President, IACFS/ME
Research Associate Professor
, Stony Brook University, Stony Brook, NY
Leonard A. Jason, Ph.D.
Professor , DePaul University, Chicago, IL

11:00 am - 11:20 pm
Break


11:20 am - 12:00 pm
Fibromyalgia: Current Status
Roland Staud, M.D.

Professor , University of Florida, Gainsville, FL

12:00 pm – 1:30 pm
Lunch Break/ Visit Exhibits


12:15 pm – 1:15 pm
Breakout Session: For parents of children with ME/CFS
Rosamund Vallings, MNZM, MB BS

Secretary, IACFS/ME
Family Physician
, Howick Health and Medical Clinic, Auckland, New Zealand
Teruhisa Miike, M.D, Ph.D.
Board Member, IACFSME
Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

1:30 pm - 2:00 pm
Legal Aspects of Disability
Hugh R. Scher

Barrister & Solicitor, Toronto, Canada

2:00 pm - 2:20 pm
Latest Research on the Pathophysiology of ME/CFS
Nancy Klimas, M.D.

Immediate Past President, IACFS/ME
Professor of Medicine, Microbiology, Immunology and Psychology , University of Miami, Miller School of Medicine and Miami VA Medical Center

2:20 pm - 2:40 pm
Disease and Discovery: What Have We Learned?
Annette Whittemore

Founder & President , Whittemore Peterson Institute for Neuro-Immune Disease, Reno, NV

2:40 pm – 3:00 pm
Effective Management of Activity Intolerance
Staci R. Stevens, M.A .

Vice President, IACFS/ME
Founding Executive Director , Fatigue Lab, University of the Pacific, Stockton, CA

3:00 pm - 3:30pm
Break


3:30 pm – 3:50 pm
Tools to Stop Crashing, Start Pacing and Planning Your Health
Alison Bested, M.D.

Haematological Pathologist, Medical Specialist Liaison, Environmental health Clinic, Women’s College Hopsital, Lecturer, Community and Family Medicine Faculty of Medicine, University of Toronto

3:50 pm - 4:10 pm
Differentiating ME/CFS and Fibromyalgia from Psychiatric Disorders
Eleanor Stein, M.D.

Psychiatrist in Private Practice
Clinical Assistant Professor, Dept of Psychiatry, University of Calgary

4:10 pm – 4:30 pm
Advocacy (ME/FM Action Network)
Lydia Neilson

Founder & CEO , National ME/FM Action Network

4:30 pm - 5:30 pm
Panel Question & Answer Session

Panel includes: Fred Friedberg, Ph.D., Byron Hyde, M.D., Anthony Komaroff, M.D., Leonard Jason, Ph.D., Hugh Scher, Rosamund Vallings, MB, BS, Teruhisa Miike, M.D, Ph.D., Roland Staud, M.D., Lydia Neilson, Nancy Klimas, M.D, Annette Whittemore, Eleanor Stein, M.D., Alison Bested, M.D.

5:30 pm –7:00 pm
Reception & Movie Debut “Voices from the Shadows”