Conferences 2016 Fort Lauderdale Agenda Patient Agenda
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12th International IACFS/ME Joint Patient and Professional Conference

Thursday, October 27th

8:00 am – 8:20 am            

Welcome & Introduction
Fred Friedberg, Ph.D.
President, IACFS/ME
Research Associate Professor, Stony Brook University
Founder and Editor, Fatigue: Biomedicine, Health, and Behavior
Nova Southeastern University and local officials, to be determined

8:20 am 9:15 am (last 15 min.: Q and A)          
New ME/CFS Developments at the National Institutes of Health
Keynote Speaker: Vicky Whittemore, Ph.D.
Program Director, Channels, Synapses and Circuits
National Institute of Neurological Disorders and Stroke

9:15 am 10:00 am (last 15 min.: Q and A)
Rituximab and Emerging Treatments
Daniel Peterson, M.D.
Sierra Internal Medicine
Oystein Fluge, MD
Chief Physician, Department of Oncology,
Haukeland University Hospital, University of Bergen, Norway
Olav Mella, MD
Department director/professor, Haukeland University Hospital, Oslo, Norway

10:00 am 10:30 am
Break/Visit Exhibits


10:30 am 11:00 am (last 10 min.: Q and A)
Ensuring effective and efficient medical appointments: What can patients and caregivers do?
Lily Chu, M.D.
Independent Consultant
Co-Vice President, IACFS/ME

11:00 am 11:45 am (last 10 min.: Q and A)
If not opioids, then what?
Jarred Younger, Ph.D.
Associate Professor
University of Alabama at Birmingham

11:45 am 1:15 pm 
Lunch Break/Visit Exhibits

1:15 pm 3:00 pm
Patient workshops (run concurrently; attendees select one only)

Legal Issues with ME/CFS--Myths and Reality (Joint Patient and Professional Workshop)
Steven Krafchick, J.D., M.P.H.
Krafchick Law Firm
IACFS/ME Board Member

Educating students suffering from ME/CFS—a Global Perspective (Joint Patient and Professional Workshop)
Faith Newton, Ed.D. 
Associate Professor of Education
Delaware State University

Moving ME/CFS Forward Internationally (Joint Patient and Professional Workshop)
Margaret Parlor
President, National ME/FM Action Network (Canada)
Mary Dimmock, Advocate and Author

Mindfulness, Meditation, Movement, and Merriment (Patient Workshop)
Judy-Anne Wilson
Educator and artist
Treasurer, ME Society of Edmonton, Canada

Pacing Approaches, Healing Time, and Other Techniques to Help Lessen ME/CFS Symptoms (Patient Workshop)
Jon Kaiser, M.D.
University of California, San Francisco

4:00 pm 5:00 pm (last 15 min. Q and A)
Fibromyalgia Update
Lucinda Bateman, M.D.
Fatigue Consultation Clinic
Jarred Younger, Ph.D.
Associate Professor
University of Alabama at Birmingham
 
Following each talk, speakers will field questions written on cards by the audience as time permits

5:00 pm – 6:00 pm
Advocacy Roundtable

Everyone is welcome to participate.

6:00 pm – 8:00 pm
Free screening of “Forgotten Plague” directed by Ryan Prior and Nicole Castillo, presented by the Blue Ribbon Foundation