ME/CFS Primer/Education Newsletters Professional Agenda


Thursday, March 12 -Professional Workshops
9:00am- 12:00pm Concurrent Workshops
Workshop 1

How to Apply for Grants
Eleanor Hanna, Ph.D.
Associate Director for Special Projects and Centers, Office of Research on Women’s Health, Office of the Director, National Institutes of Health Chair, NIH Working Group on Chronic Fatigue Syndrome, Office of the Director, NIH Advisory Committee, Women’s Health Agenda for the 21st Century, American Psychological Association

Workshop 2

Treating Sleep, Pain & Fatigue Among ME/CFS Patients
Lucinda Bateman, M.D.                                     
Board Member IACFS/ME, Secretary                                            
Director, Fatigue Consultation Clinic, Salt Lake City, UT Adjunct Clinical Faculty, University of Utah School of Medicine, Department  of Internal Medicine
Adjunct Instructor, University of Utah, Family and Preventive Medicine  

Charles W. Lapp, M.D.                                     
Assistant Clinical Professor, Duke University Medical Center                                 
Medical Director, Hunter-Hopkins Center

12:00pm - 1:00pm Lunch Break
1:00pm – 4:00pm Concurrent Workshops
Workshop 3 

Behavioral Assessment and Treatment of ME/CFS                
Fred Friedberg, PhD
Board Member IACFS/ME, Treasurer
Assistant Professor, Stony Brook University, Stony Brook, NY  

Leonard Jason, PhD                                     
Board Member IACFS/ME, Vice President

Professor, Clinical and Community Psychology, DePaul University, Chicago, IL

Workshop 4 Research 101
Suzanne Vernon, Ph.D.                                     
Scientific Director, CFIDS Association of America, Charlotte, NC

Friday, March 13 - Professional Meeting
8:00am - 8:15am Welcome and Introduction
Nancy Klimas, M.D.
Board Member IACFS/ME, President
8:15am – 8:45am  Fatigue Science for Human Health
Yasuyoshi Watanabe, M.D., Ph.D.                                    
Director, RIKEN Center for Molecular Imaging Science

Professor, Osaka City University Graduate School of Medicine, Osaka, Japan
8:45am – 10:00am

Session 1: Pharmacologic and Non-Pharmacologic Treatment Advances
Chair: Hirohito Kuratsune, M.D., D. Med. Sci.   

Designing TLR-therapeutics for treatment of virally-induced and/or immune-complex mediated
and fatigue in animal models of lupus and chronic fatigue syndrome

Petar Lenert, MD, PhD

Response to Treatment in CFS: Evaluation of Combining Cognitive Behavioural Therapy
and Graded Exercise Therapy

Greta Moorkens, MD, PhD

The Influence of EMDR and BioFeedback on the Hypervigilance in CFS                                     
Elke Van Hoof, Ph.D.

Alternative Medical Interventions used in the Treatment and
Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia

Nicole Porter, Ph.D

Interferon and Cytokine Levels in a Double-Blind, Randomized, Placebo-Controlled,
Phase III Clinical Trial (AMP-516) of Ampligen® (Poly I : C12U) in CFS
David R. Strayer, M.D

10:00am - 10:15am Break / Visit Exhibits
10:15am – 11:30pm

Session 1 (Continued): Pharmacologic and Non-Pharmacologic Treatment Advances
Chair: Fred Friedberg, Ph.D.

The Patients’ own Experiences of Post-Giardiasis Fatigue Syndrome and
the Rehabilitation Process Following a Gastrointestinal Infection in 2004

Eva Stormorken RN, MSc.

How is Physical Activity Experienced by CFS Patients? A Focus Group Study
Kirsti Malterud MD, PhD

Calling in Cognitive Behavioral Stress Management for Chronic Fatigue Syndrome
Michael H. Antoni, Ph.D.

Understanding and Overcoming Trauma Induced by CFS/ME, FM, and Other Chronic Conditions
Patricia A. Fennell, MSW, LCSW-R

Immune and Viral Response to Isoprinosine in Chronic Fatigue Syndrome                                    
Maria Araceli Vera, MD

11:30pm - 1:00pm Lunch Break/Visit Exhibitors
  Note: Lunch is Self Pay from hotel restaurants.
Networking Session: All attendees are invited to bring their lunch to the networking center
during the lunch break to network with colleagues about possible interdisciplinary studies.
1:00pm – 2:20pm

Session 5: New Developments in Epidemiology                     
Chair: Leonard Jason, Ph.D.

Causes of Death in Patients with Chronic Fatigue Syndrome
Compared to Deaths in Non-CFS Patients

Rosamund Vallings MB BS

Co-morbid medical and psychiatric conditions in fatigued and well persons:
a population study in Georgia, USA

James F. Jones, MD

Revision of exclusion criteria for CFS on pre-existing mental disorders will
increase the number of CFS patients by 10%.

Matsui Tokuzo MD, PhD

A case-control study of chronic fatigue syndrome in Swedish Twins 
Andreas Jacks, MD

Mental stress symptoms is most strongly associated with fatigue:
a population-based comparison of demographic, mental stress,
somatic morbidity, and self-rated health variables

Anners Lerdal, RN, PhD

2:20pm – 2:35pm  Break / Visit Exhibits
2:35pm – 4:00pm

Sessions 5 New Developments in Epidemiology (Continued)

Clinical and laboratory characteristics of post-infective fatigue syndrome
after acute Q fever: a prospective Australian cohort

Andrew Lloyd MD, PhD

Work-related risk factors for chronic fatigue
Eliana Mattos Lacerda, MD, PhD

Gynecological history in women with CFS: a population-based study in Wichita, KS
Roumiana S. Boneva, MD, PhD

Classification of Persons with ME/CFS by Types of Fatigue
Aaron Boulton, B.A.

Demonstration of a Correlation between Chronic Fatigue Syndrome
(CFS) and the Incidence of NHL in a Nevada Cohort

Julie Smith Gagen, MPH, PhD

4:00pm – 5:00pm

Session 4: Neuroendocrine Advances
Chair: Gudrun Lange, Ph.D.

Hormonal evaluation in the Chronic Fatigue Syndrome
Andrea Suarez

Adrenergic and Sensory Receptor Expression on Leukocytes Increases
After Moderate Exercise in Chronic Fatigue and Fibromyalgia

Alan Light, Ph.D.

Neuropeptide Y (NPY): Correlates with Sympton Severity in Chronic Fatigue Syndrome                                     
Mary Ann Fletcher, Ph.D.

Pre-existing psychological stress predicts acute and Chronic Fatigue
Following Symptomatic Parvovirus B19 Infection

Jonathan R. Kerr, M.D., Ph.D.

5:00pm – 5:30pm

Keynote Presentation

Speaker TBD

5:30pm – 6:30pm Visit Poster Presentations / Exhibits
6:30pm Special IACFS/ME Fundraising Reception Sponsored by
the Whittemore-Peterson Institute for Neuro-Immune Disease

Saturday, March 14
8:00am – 9:00am

Difficult Clinical Cases Discussed
Nancy Klimas, M.D.

Board Member IACFS/ME, President

Birgitta Evengård, M.D., Ph.D.,                                    
Board Member IACFS/ME, Vice President

Associate Professor, Department Laboratory Medicine,
Karolinska Institutet, Stockholm, Sweden

Lucinda Bateman, M.D.
Board Member, IACFS/ME. Secretary

Fatigue Consultation Clinic, Salt Lake City , UT

9:00am – 10:15am

Session 3: Infectious Disease Research
Chair: Nancy Klimas, M.D.

Herpesvirus and parvovirus B19 DNA in the gastric and intestinal
mucosa of patients with chronic fatigue syndrome

Kenny De Meirleir, M.D., Ph.D.

Identification of Differentially Expressed Viruses in American CFS Patients
Probed with a custom mammalian virus microarray

Judy A. Mikovits, PhD

High prevalence of IgM antibodies to EBV VCA but
not of elevated EBV VCA IgG in patients with CFS

Nadine Unterwalder

Active HHV-6 and HHV-7 Infection and Chronic Fatigue Syndrome
Modra Murovska, MD, PhD

Serological investigation of the role of the Herpes viruses, EBV, CMV and
HHV-6  in post-infective fatigue syndrome: a masked case-control study

Barbara Cameron PhD

10:15am – 10:30am Break/Visit Exhibits
10:30am – 12:00pm

Session 6: The Latest Research in Immunology
Chair: Nancy Klimas, M.D.

The Immunological Profile of an Australian Chronic
Fatigue Syndrome Female Population
Ekua Weba Brenu HBSc,

Immunological Biomarkers Fail to Discriminate
Between CFS and Control Subjects

Christopher R. Snell, Ph.D

Isolating Characteristic Immune Signals under Challenge in Gulf War Illness
Gordon Broderick, Ph.D.

Serum Cytokine and Chemokine Profiles of Individuals with ME/CFS
Distinguish Unique Subgroups Amont Patient Populations

Vincent C Lombardi, PhD

Patterns of Cytokine Expression in Chronic Fatigue Syndrome
Nancy G Klimas, M.D.

The Importance of Viral vs. Non-Viral Onset Subgrouping in an ME/CFS
Community Sample: Differences in Cytokine Production and Expression.

Nicole Porter, Ph.D

12:00pm – 1:15pm

Lunch Break/Visit Exhibitors
Note: Lunch is Self Pay from hotel restaurants.

Founders Lunch for all Past Presidents: Networking lunch dedicated to
Founders Session; Past presidents (Anthony Komaroff; Dedra Buchwald;
Benjamin Natelson; Dharam Ablashi ; Nancy Klimas and Ed Taylor

1:15pm – 2:15pm

Session 7: Assessment Issues from Biological to Behavioral
Chair: Fred Friedberg, Ph.D.

An Investigation of CFS Heterogeneity Utilizing Structural Equation Models
Eric Aslakson

Associations between CFS severity measures and changes in MR and
brain SPECT images of the brain

Leighton Barnden PhD

A Diagnostic Test for the Identification of Metabolic Dysfunction
J. Mark VanNess, Ph.D.

Chronic fatigue syndrome and mitochondrial dysfunction
Norman E. Booth, Ph D

2:15pm – 2:30pm Break / Visit Exhibits
2:30pm – 4:30pm

Session 8: New Developments in Pediatric ME/CFS
Chair: Leonard Jason, Ph.D.

Innate immune responses define pediatric CFS
Ritchie C. Shoemaker MD

Examining Criteria to Diagnose ME/CFS in Pediatric Samples
Leonard Jason, Ph.D.

Clinical Characteristics of Belgian Adolescents with Chronic Fatigue
Greta Moorkens, MD, PhD

Characteristics and recovery of children housebound with CFS/ME
Andrew Haig-Ferguson, BSc (hons), MSc

Do patterns of symptoms suggest distinct subtypes of pediatric chronic fatigue syndrome?
Esther Crawley BA(Hons), BM BCH, FRCPCH, PhD

Screening method of high risk group for childhood chronic fatigue syndrome from healthy students
Sanae Fukuda, Ph.D.

Selective and divided attention in childhood chronic fatigue syndrome
Kei Mizuno, Ph.D.

4:30pm - 5:30pm  Visit Poster Presentations / Exhibits
5:15pm - 6:15pm IACFS/ME Membership Business Meeting
6:30pm – 7:30pm IACFS/ME Social/Cocktails Hour
7:30pm - 9:30pm Banquet Dinner
8:30pm – 9:00pm Perpich Award
9:00pm – 9:15pm Junior Investigator Award
9:15pm – 9:30pm

Clinician Award
Special Service Award
Research Award
Research Award
Research Award  


Sunday, March 15
8:00am - 8:30am Genomics
Jonathan R. Kerr, M.D., Ph.D.
Consultant in Microbiology, St. George’s Hospital, London, UK Sir Joseph Hotung Senior
Lecturer in Inflammation
, St. George’s University of London, UK
8:30am – 10:15am

Session 9: Research Developments in Genetics
Chair: Nancy Klimas, M.D.

Gene polymorphism studies support the implication of intestinal dysfunction and
activation of the Th17 axis in chronic fatigue syndrome

Marc Fremont, Ph.D.

Microbial Infections in Eight Genomic Subtypes of Chronic Fatigue / Myalgic Encephalomyelitis
Jonathan R Kerr MD, PhD, FRCPath

microRNA expression patterns in chronic fatigue syndrome.
Robert Daniel Petty

A Genomewide Association Study of Chronic Fatigue Syndrome
Mangalathu Rajeevan, PhD

Variation at the HLA and KIR gene loci in Chronic Fatigue Syndrome
Judy A. Mikovits, PhD

Cytokine polymorphisms have a synergistic effect on severity and
duration of acute infective illnesses and post-infective fatigue

Andrew Lloyd MD, PhD

10:15am – 10:30am Break
10:30am – 11:30pm

Session 10: Advances in Brain functioning
Chair: Gudrun Lange, Ph.D.

Do Physical Complaints Negatively Influence the Information Processing Speed in CFS?
Elke Van Hoof, Ph.D.

Electroencephalographic Data Distinguish Patients with CFS From Healthy and Depressed Controls
Frank H. Duffy, MD

Cognitive Function in Adolescents and Young Adults with Chronic Fatigue Syndrome
Laura Younis BNurs(Prereg), BAppSc(Psych)(Hons), Doctoral Candidate DPsych(Health)

Assessment of Amino Acid Neurotransmitter Function in Chronic Fatigue Syndrome,
Major Depressive Disorder and Healthy Volunteers In Vivo using 1H MR Spectroscopy

Dikoma C. Shungu, Ph.D.

11:30pm – 12:45pm

Lunch / Visit Exhibits
Note: Lunch is Self Pay from hotel restaurants.

Networking Session: All attendees are invited to bring their lunch
to the networking center during the lunch break
to network with colleagues assessment and treatment issues.

12:45pm – 1:45pm

Modeling the Integrative Approach: The Japanese Experience
Co-Chair: Birgitta Evengård, MD, PhD

Co-Chair: Hirohito Kuratsune, M.D.

Development of anti-fatigue food and equipment through animal and human studies
Yasuyoshi Watanabe, MD, PhD

Relationship between fatigue and daily diet, and assessment of metal task
induced fatigue model using heart rate variability analysis

Hirohiko Kuratsune, MD, PhD

Evaluation of labor’s fatigue using chaos analysis
Seiki Tajima, M.D.

Pathophysiology of chronic fatigue syndrome in childhood
Teruhisa Miike, M.D.Ph.D

1:45pm – 2:30pm Summary of the Conference                                                
Anthony L. Komaroff, M.D.
Simcox-Clifford –Higby Professor of Medicine, Harvard Medical School
2:30pm Conference ends