ME/CFS Primer/Education Newsletters IACFS/ME Newsletter-9th International IACFS/ME Conference Agenda

IACFS/ME Newsletter

9th International IACFS/ME Conference Agenda             

Developing Interdisciplinary Collaborations: Chronic Fatigue Syndrome,

Fibromyalgia, and Related Illnesses

March 12-15, 2009
Peppermill Resort Hotel, Reno, Nevada, USA

Complete Conference Information

Thursday, March 12 - Patient Meeting

9:30am – 9:45am 

Welcome & Introduction
Nancy Klimas, M.D
Board Member IACFS/ME, President

9:45am – 10:45am New Developments in Possible Causes of ME/CFS
  Daniel Peterson, M.D.
Anthony L. Komaroff, M.D.
Simcox-Clifford –Higby Professor of Medicine, Harvard Medical School 
10:45am – 11:00am Break
11:00am - 12:00pm New Research on What Helps People Cope with ME/CFS

Fred Friedberg, PhD
Board Member IACFS/ME, Treasurer
Assistant Professor, Stony Brook University, Stony Brook, NY

Leonard Jason, Ph.D.                                     
Board Member IACFS/ME, Vice President
Professor, Clinical and Community Psychology, DePaul University, Chicago, IL

12:00pm – 1:30pm Lunch Break
1:30pm – 2:30pm Latest Research on the Pathophysiology of ME/CFS

Hirohito Kuratsune, M.D., D. Med. Sci
Board Member IACFS/ME
Professor, Faculty of Health Science for Welfare,
Kansai University of Welfare Sciences 
Visiting Professor,
Clinical Center for Fatigue Science,
Osaka City University Medical School

Kenneth J. Friedman, Ph.D.
Board Member IACFS/ME
Associate Professor of Pharmacology and Physiology,
New Jersey Medical School,
University of Medicine and Dentistry of NJ  

 2:30pm – 3:30pm Assessing ME/CFS Brain Functioning

Gudrun Lange, Ph.D.                                     
Clinical Neuropsychologist –Professor, UMDNJ-New Jersey Medical School
Director, War Related Illness and Injury Study Center, DVA NJ Health Care System

An overview about assessment of cognitive function in CFS/ME. 
Utility and pitfalls of neuropsychological testing and neuroimaging will be discussed. 
Questions are encouraged.

3:30pm – 3:45pm Break
3:45pm – 4:45pm New Developments in Pharmacologic Treatments
  Nancy Klimas, M.D.
Board Member IACFS/ME, President
4:45pm - 5:30pm Panel Question & Answer Session 
  Nancy Klimas, M.D., Dan Peterson, M.D., Anthony L. Komaroff, M.D.,
Fred Friedberg, Ph.D., Leonard Jason, Ph.D., Hirohito Kuratsune, M.D., D. Med. Sci,
Kenneth Friedman, Ph.D., Gudrun Lange, Ph.D

5:30pm - 6:30pm


Screening of the documentary "Invisible"

Patient Meeting Concludes

Thursday, March 12 -Professional Workshops
9:00am- 12:00pm Concurrent Workshops
Workshop 1

How to Apply for Grants
Eleanor Hanna, Ph.D.
Associate Director for Special Projects and Centers, Office of Research on Women’s Health,
Office of the Director,
National Institutes of Health 
NIH Working Group on Chronic Fatigue Syndrome,
Office of the Director, NIH
Advisory Committee,
Women’s Health Agenda for the 21st Century,
American Psychological Association

Workshop 2

Treating Sleep, Pain & Fatigue Among ME/CFS Patients
Lucinda Bateman, M.D.                                     
Board Member IACFS/ME, Secretary
Director, Fatigue Consultation Clinic, Salt Lake City, UT
Adjunct Clinical Faculty, University of Utah School of Medicine,
Department  of Internal Medicine
Adjunct Instructor, University of Utah, Family and Preventive Medicine  

Charles W. Lapp, M.D.
Assistant Clinical Professor, Duke University Medical Center                                 
Medical Director, Hunter-Hopkins Center

12:00pm - 1:00pm Lunch Break
1:00pm – 4:00pm Concurrent Workshops
Workshop 3 

Behavioral Assessment and Treatment of ME/CFS                
Fred Friedberg, Ph.D.
Board Member IACFS/ME, Treasurer
Assistant Professor, Stony Brook University, Stony Brook, NY  

Leonard Jason, Ph.D.                                    
Board Member IACFS/ME, Vice President

Professor, Clinical and Community Psychology, DePaul University, Chicago, IL

Workshop 4 Research 101
Suzanne Vernon, Ph.D.
Scientific Director, CFIDS Association of America, Charlotte, NC

Friday, March 13 - Professional Meeting
8:00am - 8:15am Welcome and Introduction
Nancy Klimas, M.D.
Board Member IACFS/ME, President
8:15am – 8:45am  Fatigue Science for Human Health
Yasuyoshi Watanabe, M.D., Ph.D.            
Director, RIKEN Center for Molecular Imaging Science

Professor, Osaka City University Graduate School of Medicine, Osaka, Japan
8:45am – 10:00am

Pharmacologic and Non-Pharmacologic Treatment Advances
Chair: Hirohito Kuratsune, M.D., D. Med. Sci.   

Designing TLR-therapeutics for treatment of virally-induced and/or
immune-complex mediated inflammation and
fatigue in animal models of lupus and chronic fatigue syndrome

Petar Lenert, M.D., Ph.D.

Response to Treatment in CFS: Evaluation of Combining Cognitive Behavioural Therapy and
Graded Exercise Therapy

Greta Moorkens, M.D., Ph.D.

The Influence of EMDR and BioFeedback on the Hypervigilance in CFS 
Elke Van Hoof, Ph.D.

Alternative Medical Interventions Used in the Treatment and
Management of Myalgic Encephalomyelitis/
Chronic Fatigue Syndrome and Fibromyalgia

Nicole Porter, Ph.D

Interferon and Cytokine Levels in a Double-Blind, Randomized,
Phase III Clinical Trial (AMP-516) of
Ampligen® (Poly I : C12U) in CFS

David R. Strayer, M.D

10:00am - 10:15am Break / Visit Exhibits & Poster Presentations
10:15am – 11:30pm

(Continued): Pharmacologic and Non-Pharmacologic Treatment Advances
Chair: Fred Friedberg, Ph.D.

The Patients’ Own Experiences of Post-Giardiasis Fatigue Syndrome and
the Rehabilitation Process Following a Gastrointestinal Infection in 2004

Eva Stormorken, R.N., MSc.

Cognitive Behavioral Therapy for Chronic Fatigue Syndrome:
A Descriptive Study of the Patients Perspective

Elke Van Hoof, Ph.D. 

Calling in Cognitive Behavioral Stress Management for Chronic Fatigue Syndrome
Michael H. Antoni, Ph.D.

Understanding and Overcoming Trauma Induced by CFS/ME, FM, and
Other Chronic Conditions

Patricia A. Fennell, MSW, LCSW-R

Immune and Viral Response to Isoprinosine in Chronic Fatigue Syndrome 
Maria Araceli Vera, M.D.

11:30pm - 1:00pm Lunch Break/Visit Exhibitors & Poster Presentations
  Note: Lunch is Self Pay from hotel restaurants.
Networking Session: All attendees are invited to bring their lunch to the
networking center during the lunch break to network
with colleagues about possible interdisciplinary studies.
1:00pm – 2:20pm

New Developments in Epidemiology                     
Chair: Leonard Jason, Ph.D.

Causes of Death in Patients with Chronic Fatigue Syndrome
Compared to Deaths in Non-CFS Patients

Rosamund Vallings, M.B., B.S.

Co-morbid medical and psychiatric conditions in fatigued and well persons:
a population study in Georgia, USA

James F. Jones, M.D.

Revision of exclusion criteria for CFS on pre-existing mental disorders
will increase the number of CFS patients by 10%

Matsui Tokuzo, M.D., Ph.D.

A case-control study of chronic fatigue syndrome in Swedish Twins 
Andreas Jacks, M.D.

Mental stress symptoms most strongly associated with fatigue:
a population-based comparison of demographic,
mental stress, somatic morbidity, and self-rated health variables

Anners Lerdal, R.N., Ph.D.

2:20pm – 2:35pm  Break / Visit Exhibits & Poster Presentations
2:35pm – 4:00pm

(Continued): New Developments in Epidemiology 

Clinical and laboratory characteristics of post-infective
fatigue syndrome after acute Q fever:
a prospective Australian cohort

Andrew Lloyd, M.D., Ph.D.

Work-related risk factors for chronic fatigue
Eliana Mattos Lacerda, M.D., Ph.D.

Gynecological history in women with CFS:
a population-based study in Wichita, KS

Roumiana S. Boneva, M.D., Ph.D.

Classification of Persons with ME/CFS by Types of Fatigue
Aaron Boulton, B.A.

Demonstration of a Correlation between Chronic Fatigue Syndrome (CFS) and
the Incidence of NHL in a Nevada Cohort

Julie Smith Gagen, MPH, Ph.D.

4:00pm – 5:00pm

Neuroendocrine Advances
Chair: Gudrun Lange, Ph.D.

Hormonal Evaluation in the Chronic Fatigue Syndrome
Andrea Suarez Segade, M.D.

Adrenergic and Sensory Receptor Expression on Leukocytes
Increases After Moderate Exercise in Chronic Fatigue and Fibromyalgia

Alan Light, Ph.D.

Neuropeptide Y (NPY): Correlates with Sympton Severity in Chronic Fatigue Syndrome                                     
Mary Ann Fletcher, Ph.D.

Pre-existing Psychological Stress Predicts Acute and
Chronic Fatigue Following Symptomatic Parvovirus B19 Infection

Lihan Zhang

Sleep Patterns in 61 Patients from a CFS Clinic and
Immunomodulatory Effects of Sodium Oxybate in Patients with Alpha Intrusion

Natalie Hone

5:00pm – 5:30pm

Keynote Presentation

The Honorable John Kitzhaber, M.D.
Governor of Oregon 1995-2003

5:30pm – 6:30pm Visit Poster Presentations / Exhibits
6:30pm – 8:30pm

Special IACFS/ME Fundraising Reception - Nevada Museum of Art, Reno
Sponsored by the Whittemore-Peterson Institute for Neuro-Immune Disease

Tickets available at Conference Registration $500 min donation


Saturday, March 14
8:00am – 9:00am

Difficult Clinical Cases Discussed
Nancy Klimas, M.D.

Board Member IACFS/ME, President

Birgitta Evengård, M.D., Ph.D.,                                    
Board Member IACFS/ME, Vice President

Associate Professor, Department Laboratory Medicine, Karolinska Institutet,
Stockholm, Sweden

Lucinda Bateman, M.D.
Board Member, IACFS/ME. Secretary

Fatigue Consultation Clinic, Salt Lake City, UT

9:00am – 10:15am

Infectious Disease Research
Chair: Nancy Klimas, M.D.

Herpesvirus and Parvovirus B19 DNA in the Gastric and Intestinal Mucosa of Patients
with Chronic Fatigue Syndrome

Kenny De Meirleir, M.D., Ph.D.

Identification of Differentially Expressed Viruses in American CFS Patients Probed
with a custom mammalian virus microarray

Judy A. Mikovits, Ph.D

High prevalence of IgM antibodies to EBV VCA but not of elevated
EBV VCA IgG in patients with CFS

Nadine Unterwalder

Active HHV-6 and HHV-7 Infection and Chronic Fatigue Syndrome
Modra Murovska, M.D., Ph.D.

Serological investigation of the role of the Herpes viruses, EBV, CMV and
HHV-6  in post-infective fatigue syndrome: a masked case-control study

Barbara Cameron, Ph.D.

10:15am – 10:30am Break/Visit Exhibits & Poster Presentations
10:30am – 12:00pm

The Latest Research in Immunology
Chair: Nancy Klimas, M.D.

The Immunological Profile of an Australian Chronic Fatigue
Syndrome Female Population
Ekua Weba Brenu, HBSc

Immunological Biomarkers Fail to Discriminate
Between CFS and Control Subjects

Christopher R. Snell, Ph.D

Isolating Characteristic Immune Signals Under
Challenge in Gulf War Illness

Gordon Broderick, Ph.D.

Serum Cytokine and Chemokine Profiles of Individuals with ME/CFS
Distinguish Unique Subgroups Among Patient Populations

Vincent C. Lombardi, Ph.D.

Patterns of Cytokine Expression in Chronic Fatigue Syndrome
Nancy G. Klimas, M.D.

The Importance of Viral vs. Non-Viral Onset Subgrouping in an
ME/CFS Community Sample: Differences in Cytokine Production
and Expression

Nicole Porter, Ph.D

12:00pm – 1:15pm

Lunch Break/Visit Exhibitors & Poster Presentations
Note: Lunch is Self Pay from hotel restaurants.

Founders Lunch for all Past Presidents: Networking lunch
dedicated to Founders Session;
Past Presidents (Anthony Komaroff, Dedra Buchwald, Benjamin Natelson,
Dharam Ablashi, Nancy Klimas, and Ed Taylor

1:15pm – 2:15pm

Assessment Issues from Biological to Behavioral
Chair: Fred Friedberg, Ph.D.

An Investigation of CFS Heterogeneity Utilizing
Structural Equation Models

Brian M. Gurbaxani, Ph.D.

Associations between CFS severity measures and
changes in MR and brain SPECT images of the brain

Leighton Barnden, Ph.D.

A Diagnostic Test for the Identification of Metabolic Dysfunction
J. Mark VanNess, Ph.D.

Chronic fatigue syndrome and mitochondrial dysfunction
Norman E. Booth, Ph.D.

2:15pm – 2:30pm Break / Visit Exhibits & Poster Presentations
2:30pm – 4:30pm

New Developments in Pediatric ME/CFS
Chair: Leonard Jason, Ph.D.

Innate immune responses define pediatric CFS
Ritchie C. Shoemaker, M.D.

Examining Criteria to Diagnose ME/CFS in Pediatric Samples
Leonard Jason, Ph.D.

Clinical Characteristics of Belgian Adolescents with Chronic Fatigue
Greta Moorkens, M.D., Ph.D.

Characteristics and recovery of children housebound with CFS/ME
Andrew Haig-Ferguson, BSc (hons), MSc

Do patterns of symptoms suggest distinct subtypes of
pediatric chronic fatigue syndrome
Esther Crawley BA(Hons), BM BCH, FRCPCH, Ph.D.

Screening method of high risk group for childhood
chronic fatigue syndrome from healthy students

Sanae Fukuda, Ph.D.

Selective and divided attention in childhood chronic fatigue syndrome
Kei Mizuno, Ph.D.

4:30pm - 5:30pm  Visit Poster Presentations / Exhibits
5:15pm - 6:15pm IACFS/ME Membership Business Meeting
6:30pm – 7:30pm IACFS/ME Social/Cocktails Hour
7:30pm - 9:30pm Banquet Dinner
8:30pm – 9:30pm

Awards Ceremony

Perpich Award, Junior Investigator Award,
Clinician Award, Special Service Award, Research Awards




Sunday, March 15

8:00am - 8:30am Genomics - Microbial Infections in Eight Genomic
Subtypes of Chronic Fatigue / Myalgic Encephalomyelitis

Lihan Zhang
Medical Student, St. George’s University of London, London, UK
8:30am – 10:15am

Research Developments in Genetics
Chair: Nancy Klimas, M.D.

Gene polymorphism studies support the implication of intestinal dysfunction
and activation of the Th17 axis in chronic fatigue syndrome

Marc Fremont, Ph.D.

Natural Killer Cell Function is Depressed in Gulf War Illness    
Toni Whistler, Ph.D.

microRNA Expression Patterns in Chronic Fatigue Syndrome.
Robert D. Petty, BSc., Ph.D-Student

A Genomewide Association Study of Chronic Fatigue Syndrome
Mangalathu Rajeevan, Ph.D.

Variation at the HLA and KIR gene loci in Chronic Fatigue Syndrome
Judy A. Mikovits, Ph.D.

Cytokine polymorphisms have a synergistic effect on severity
and duration of acute infective illnesses and post-infective fatigue

Andrew Lloyd, M.D., Ph.D.

10:15am – 10:30am Break / Visit Exhibits
10:30am – 11:30pm

Advances in Brain Functioning
Chair: Gudrun Lange, Ph.D.

Do Physical Complaints Negatively Influence the Information Processing Speed in CFS?
Elke Van Hoof, Ph.D.

Electroencephalographic Data Distinguish Patients with CFS From Healthy and Depressed Controls
Frank H. Duffy, M.D.

Cognitive Function in Adolescents and Young Adults with Chronic Fatigue Syndrome
Laura Younis BNurs(Prereg), BAppSc(Psych)(Hons), Doctoral Candidate DPsych(Health)

Assessment of Amino Acid Neurotransmitter Function in
Chronic Fatigue Syndrome, Major Depressive Disorder and
Healthy Volunteers In Vivo using 1H MR Spectroscopy

Dikoma C. Shungu, Ph.D.

11:30pm – 12:45pm

Lunch / Visit Exhibits
Note: Lunch is Self Pay from hotel restaurants.

Networking Session: All attendees are invited to bring their lunch
to the networking center during the lunch break to network with
colleagues assessment and treatment issues.

12:45pm – 1:45pm

Modeling the Integrative Approach: The Japanese Experience
Co-Chair: Birgitta Evengård, M.D., Ph.D. &
Co-Chair: Hirohito Kuratsune, M.D.

Development of anti-fatigue food and equipment through animal and human studies
Yasuyoshi Watanabe, M.D., Ph.D.

Relationship between fatigue and daily diet, and assessment of metal task induced fatigue model
using heart rate variability analysis

Hirohiko Kuratsune, M.D., Ph.D.

Evaluation of labor’s fatigue using chaos analysis
Seiki Tajima, M.D.

Pathophysiology of chronic fatigue syndrome in childhood
Teruhisa Miike, M.D., Ph.D.

1:45pm – 2:30pm

Summary of the Conference                                                
Anthony L. Komaroff, M.D.
Simcox-Clifford –Higby Professor of Medicine, Harvard Medical School
Editor in Chief, Harvard Health Publications

2:30pm Conference ends